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Studies currently recruiting participants
Studies currently recruiting participants
🔹 Participant recruitment: We’re looking for people with scleroderma who are experiencing memory or focus problems to join our study. Over an 8 week period (3 months) the study provides access to play online brain games and to join weekly virtual lectures with a peer mentor and facilitator. You will complete online surveys and cognitive tests before, during, and after the program to track progress. Participants receive compensation for each completed survey.
🔹 Sign up here: https://redcap.link/umbrainboost
Our team will contact you to see if you’re eligible.
🔹 Study status: Open
Very little is known about perceived cognitive changes and how these changes impact everyday life in people with scleroderma. In our initial studies, we conducted focus groups to explore how people with scleroderma experience cognitive difficulties. We then conducted an online survey to investigate the associations of perceived cognitive function with symptoms and daily functioning in a larger sample size. This project was funded by a Dan Barry Research Grant at the University of Michigan (PI Chen; Mentor Murphy) and is currently being funded by the National Scleroderma Foundation.
Publications:
Cognitive difficulties in people with systemic sclerosis: a qualitative study
🔹 Participant recruitment: We’re looking for people with scleroderma, and their caregivers, who are willing to download and use the app and then participate in an interview about their experience. Participants receive compensation for their interview.
🔹 Sign up here: https://redcap.link/RENEWapp
Our team will contact you to see if you’re eligible.
🔹 Study status: Open
Our team developed an app for the RENEW program (Resilience-based Energy Management to Enhance Well-being). The app has all of the content in our web-based materials but allows people to track their health behaviors and receive feedback about their performance on the app. It is funded by the Livewell RERC and the Shepherd Center of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).
🔹 Participant recruitment: We’re conducting a study to help people with spondylitis manage fatigue and improve daily energy. The study has two phases:
Phase 1 – Website Feedback (Enrolling)
Review our energy management website. You will then participate in a short virtual interview to share your thoughts on the content, layout, and usefulness. Your feedback will directly shape the next version of the website and compensation will be provided for your feedback.
Phase 2 – 12-Week Program with Peer Coaching (Not yet enrolling)
Try the updated program, combining the website tools with one-on-one virtual sessions with a health coach who also lives with spondylitis. The program is 12 weeks (3 months). Sessions focus on practical strategies to manage fatigue. You will complete online surveys before, during, and after the program to track progress. Participants receive compensation for each completed survey.
🔹 Sign up here: https://redcap.link/axSpA-RENEW
Our team will contact you to see if you’re eligible.
🔹 Study status: Open
Our team designed a website for people with spondylitis to learn strategies, set goals, and track progress at their own pace. The website has been adapted for people with spondylitis based on the fatigue management program, RENEW program (Resilience-based Energy Management to Enhance Well-being), for another rheumatic disease called scleroderma. It is funded by the Spondylitis Association of America (SAA).
Learn more about other opportunities to engage in our research and community
Why join?
Be the first to hear about exciting research opportunities in the University of Michigan Scleroderma Program! By joining our registry, you can participate in focus groups, behavioral studies, clinical trials, and new intervention research tailored to your interests and condition.
Who can join?
Adults 18 years or older with a diagnosis of scleroderma.
What's involved?
You would complete a brief online form with your contact information and scleroderma diagnosis.
- Provide basic contact and personal information so we can match you to studies you may qualify for.
- Your information may be shared with other approved researchers (all studies follow strict safety and privacy rules from the Institutional Review Board (IRB)).
- If you are a patient of Michigan Medicine, we will have access to your medical record to verify your diagnosis and characteristics of your condition
- We will contact you at least every 5 years to keep your contact information up to date to make sure you never miss an opportunity.
Ready to get started?
🔹 Sign up here: https://is.gd/ScleroRehabReg
For Michigan Medicine scleroderma patients, you have the opportunity to connect with someone who truly understands. Our Scleroderma Peer Mentors are trained Michigan Medicine patient volunteers who offer guidance, encouragement, and support to others living with scleroderma.
Whether you want to share your experience or get support from someone who’s been there, our Peer Mentor Program is here for you.
Learn more and get involved: Peer Mentor Program
