Kayte Spector-Bagdady, JD, MBE
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About
Kayte Spector-Bagdady, JD, MBe, studies how the law and institutional practices impact the ethics of the research use of health data. Her work follows data from clinical care into research, across academic and commercial settings, and into emerging technologies. As health data become central to medical discovery, questions of access, control, and accountability grow more urgent. Her work asks how we can advance scientific discovery with health data while honoring the people and communities who provide it.
At the University of Michigan, Prof. Spector studies how genetic researchers choose and access genomic databases, how patients view research and commercial uses of data and specimens, and how academia and industry govern data-sharing partnerships. Her research demonstrates procedural factors, like speed and ease of access, shape which datasets researchers use - and whose data inform discovery. Her recent articles have been published in The New England Journal of Medicine, Science, JAMA, Health Affairs, and Nature Medicine, and her research or expertise has appeared in the NY Times, The Washington Post, The Wall Street Journal, TIME, and CNN.
Prof. Spector is the inaugural George E. Wantz Professor of Bioethics and a tenured Associate Professor of Obstetrics and Gynecology at the U-M Medical School. She directs Michigan Bioethics, which received the 2022 American Society of Bioethics & Humanities Cornerstone Award; chairs the Medical School’s Research Ethics Committee; and serves as the ethicist on Michigan Medicine’s Human Data and Biospecimen Release Committee. She was the first faculty member to earn tenure at the U-M Medical School with a JD as a terminal degree.
Her national service includes serving as Associate Director of the Presidential Commission for the Study of Bioethical Issues; chairing the American Heart Association’s Data Sharing, Privacy, and Security Committee; and serving on the National Academies committee on newborn screening. She is an Associate Editor of the American Journal of Bioethics, a current Greenwall Foundation Faculty Scholar, and a Fellow of the Hastings Center. A former drug and device attorney, she earned her JD and master’s in bioethics at the University of Pennsylvania and her BA at Middlebury College.
Links
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Qualifications
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Postdoctoral Research FellowUniversity of Michigan Medical School, Center for Bioethics & Social Sciences in Medicine, Ann Arbor, USA
2015 - 2016
Postdoctoral Research
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JD, LawUniversity of Pennsylvania School of Law, 3501 Sansom Street, Philadelphia, PA, 19104, United States
2006 - 2009
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MBEUniversity of Pennsylvania School of Medicine, Perelman School of Medicine at the University of Pennsylvani Blockley Hall, 11th & 14th Floors 423 Guardian Drive, Philadelphia, PA, 19104, United States
2007 - 2009
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BAMiddlebury College, Middlebury, VT, United States
2000 - 2004
Center Memberships
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Center MemberInstitute for Healthcare Policy and Innovation
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Center MemberCenter for History, Humanities, Arts, Social Sciences and Ethics in Medicine
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Center MemberInstitute for Research on Women And Gender
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Center MemberAI and Digital Health Innovation
Recent Publications
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Jaffe K, Jutras-Aswad D, Spector-Bagdady K, Richardson L. International Journal of Drug Policy, 2026 Jun 1; 152:Journal ArticleUncovered, underfunded, and undervalued: How policy contexts shape knowledge production in multi-site substance use trials
DOI:10.1016/j.drugpo.2026.105278 PMID: 41980488 -
Bracic A, Spector-Bagdady K, Towle S, Zhang R, James CA, Price WN. JAMA Network Open, 2026 Mar 6; 9 (3): e260815 - e260815.Journal ArticleFactors for Patient Trust and Acceptance of Medical Artificial Intelligence
DOI:10.1001/jamanetworkopen.2026.0815 -
Greene AK, Thomas JD, Jaffe K, Chen L, Ryan KA, Zikmund-Fisher BJ, Roberts JS, McGuire AL, Hendy K, Spector-Bagdady K. AJOB Empirical Bioethics, 2026 Jan 1; 17 (1): 20 - 29.Journal ArticleDifferences Between Government, Consortium, and Private Database Stewards Impacting the Genomic Data Market: A Survey of U.S. Academic Genetic Researchers
DOI:10.1080/23294515.2026.2632088 PMID: 41790447 -
Truhlar A, Charnysh E, Pal S, Reader JM, Hendy K, Feero WG, Ryan K, Vogle A, McCain S, Ferber RA, Furnival J, Lee C, Roberts JS, Uhlmann WR, Sanghavi K. Genetics in Medicine Open, 2026 Jan 1; 4:Journal ArticleGenetic counselors’ perspectives and experiences with workplace genetic testing: Results of a national survey
DOI:10.1016/j.gimo.2025.103483 -
Prince AER, Berkman B, Ford D, Fox D, Guerrini C, Koopmann A, Ram N, Roberts JL, Spector-Bagdady K, Suter S. Journal of Law and the Biosciences, 2026 Jan 1; 13 (1):Journal ArticlePutting the L in ELSI: legal methods for bioethics research
DOI:10.1093/jlb/lsag002 -
Cohn B, Prince AER, Callahan K, Roberts JS, Vogle A, Mathews DJH. Public Health Genomics, 2025 Dec 24; 28 (1): 190 - 195.Journal ArticleWorkplace Genomic Testing: What Do Company Websites Say about Federal Privacy and Anti-Discrimination Laws?
DOI:10.1159/000546189 PMID: 40319871 -
Giacobone C, Spector-Bagdady K, Ryan K, Pearse S, Uhlmann W. 2025 Nov 28;Proceeding / Abstract / PosterData Sharing: Exploring the Landscape of Informed Consent for Clinical Genetic Testing
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Ram N, Prince AER, Roberts JL, Fox D, Spector-Bagdady K. Science, 2025 Sep 11; 389 (6765): 1092 - 1094.Journal ArticleThe precarious future of consumer genetic privacy
DOI:10.1126/science.adz7229 PMID: 40934319
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