Wendy Uhlmann, MS, LCGC
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About
Wendy R. Uhlmann, MS, LCGC, is the director/senior genetic counselor of the Medical Genetics Clinic (adults) at Michigan Medicine/University of Michigan and provides genetic counseling, primarily to patients with neurogenetic conditions (e.g. ALS, Alzheimer's disease/dementias, Huntington disease). She is a Clinical Professor in the Departments of Internal Medicine and Human Genetics and notably was the first faculty member to achieve this rank in the medical school with a master’s degree. She is an executive faculty member of the master's degree Genetic Counseling Program, member of the Adult Ethics Committee and the IMPOWER Council.
Wendy Uhlmann is a Past President of the National Society of Genetic Counselors (NSGC) and previously served on the Editorial Board of the Journal of Genetic Counseling, the Board of Directors of the American Society of Human Genetics, the Genetic Alliance Board and as NSGC’s liaison to the National Advisory Council for Human Genome Research. Currently she serves on the Advisory Board for the Center for ELSI Resources and Analysis (CERA) and the Scientific Advisory Board for the Michigan Biotrust and previously served on the ELSI Congress Organizing Committee.
Wendy Uhlmann co-edited the first two editions of the book “A Guide to Genetic Counseling,” which is used internationally in genetic counseling graduate programs. She teaches in courses in the genetic counseling program, medical school and School of Public Health in addition to providing clinical supervision for trainees and serving as a research mentor. Wendy Uhlmann was the recipient of NSGC’s Regional Leadership Award (1996), the Outstanding Volunteer Award (2009), the Natalie Weissberger Paul Lifetime Achievement Award (2011) and University of Michigan’s Basic Sciences Teaching Award in Human Genetics (2013).
Center Memberships
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Center MemberCenter for History, Humanities, Arts, Social Sciences and Ethics in Medicine
Research Overview
Genetic testing with focus on predictive genetic testing
Integration of genetics into healthcare
Ethical issues and genetics
Return of results (research and clinical)
Genetics policy issues
Recent Publications
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Goldman JS, Fong JC, Mu W, Dratch L, Uhlmann WR. Journal of Genetic Counseling, 2026 May 20; 35 (3):Journal Article40+ years of the Huntington disease predictive genetic testing protocol: Recommendations for an update
DOI:10.1002/jgc4.70226 -
Uhlmann W. 2026 Apr 21;Presentation"Navigating the Ethical Landscape of Genetic Testing in Children: Challenges and Considerations in Clinical Practice" [First talk of one-day symposium "New Frontiers in Pediatric Neurology"]
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Uhlmann W. 2026 Apr 21;Presentation"We've Got This: Applying Lessons from Our Field's Past in Challenging Times"
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Blasco D, McCain S, Pal S, Uhlmann WR, Ferber R, Sanghavi K, Charnysh E, Prince AER, Lee C, Roberts JS. Journal of Community Genetics, 2026 Apr 1; 17 (2):Journal ArticleViews and experiences regarding workplace genetic testing: findings from a national survey of U.S. employees
DOI:10.1007/s12687-025-00856-6 -
Diaz Caro D, Rodriguez S, Uhlmann WR, Goldman JS, McCain S, Wetmore JB, Cabán M, Chung WK, Roberts JS, Siegel K, Ottman R. Journal of Alzheimer’s Disease, 2026 Apr 2;Journal ArticleExploring immediate responses to <i>APOE</i> <b>ε</b> 4/ε4 genotype and Alzheimer's disease risk disclosure in Latinos
DOI:10.1177/13872877261435633 -
Uhlmann W, Mook A, Rochman M. 2026 Mar 10;PresentationPractice Recommendations for Genetic Testing of Ataxias
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Truhlar A, Charnysh E, Pal S, Reader JM, Hendy K, Feero WG, Ryan K, Vogle A, McCain S, Ferber RA, Furnival J, Lee C, Roberts JS, Uhlmann WR, Sanghavi K. Genetics in Medicine Open, 2026 Jan 1; 4:Journal ArticleGenetic counselors’ perspectives and experiences with workplace genetic testing: Results of a national survey
DOI:10.1016/j.gimo.2025.103483 -
Cohn B, Prince AER, Callahan K, Roberts JS, Vogle A, Mathews DJH. Public Health Genomics, 2025 Dec 24; 28 (1): 190 - 195.Journal ArticleWorkplace Genomic Testing: What Do Company Websites Say about Federal Privacy and Anti-Discrimination Laws?
DOI:10.1159/000546189 PMID: 40319871