Data Warehouse | MI-AORTA
Data Warehouse
The MI-AORTA Data Warehouse is able to pull data from existing aortic registries, in addition to data through MiChart into one source. This allows researchers to better identify patient cohorts and identify data from more than one source for clinical, quality, and research purposes.
Please note the MI-AORTA data team does not provide statistical or data analytic support. If you need help with these services, please reach out to Consulting for Statistics, Computing & Analytics Research (CSCAR).
How to Utilize the Data Warehouse
- Submit a data or biospecimen request via Qualtrics for any of the below sources
- The team will run a query for the data and/or biospecimen
- A meeting will be established, if needed, to discuss next steps
A flowchart diagram illustrating data integration into the MI-AORTA Data Warehouse. Five data sources—Adult STS | ACSD, Congenital STS | CHSD, BMC2, IRAD, and CHIP—feed into the MI-AORTA Data Warehouse. From there, data flows to two outputs: Patient Cohort Identification and FCVC Dashboard.
Database and Registry Differences:
The STS Adult Cardiac Surgery Database (ACSD) is the world's premier clinical outcomes registry for adult cardiac surgery. Launched in 1989, the Database contains more than 10 million cardiac surgery procedure records and currently has nearly 4,300 participating physicians, including surgeons and anesthesiologists.
The STS Congenital Heart Surgery Database (CHSD) is the largest database in North America dealing with congenital cardiac malformations. The CHSD contains more than 600,000 congenital heart surgery procedure records and currently has more than 1,000 participating physicians, including surgeons and anesthesiologists.
A collaborative consortium that is a perspective, multicenter quality improvement registry, dedicated to improving the quality of care and outcomes in patients throughout the state of Michigan. There are over 34 participating hospitals in Michigan and data is included on the following vascular surgery procedures: Open AAA repairs and EVARs, open bypass procedures, open thrombectomy procedures, and carotid endarterectomy and carotid stenting.
Blue Cross Blue Shield of Michigan Collaborative Consortium (BMC2) - Vascular Surgery
The International Registry of Acute Aortic Dissection (IRAD) is a consortium of research centers evaluating current management and outcomes of acute aortic dissection and intramural hematoma. It was established in 1996, and is comprised of 58 large referral centers in 13 countries. IRAD endeavors to assess the etiological factors, modes of presentation, clinical features, treatment, and hospital and post-discharge outcomes of patients with acute aortic dissection around the world.
The Cardiovascular Health Improvement Project (CHIP) Biobank is a biorepository of DNA, plasma, serum, and aortic tissue samples, as well as an extensive clinical database of medical/family history and genetic data. It is a FCVC center-level resource, and investigators are encouraged to reach out to collaborate regarding sample or data usage, inquires about pilot data, or for grant submission information.
Resources for Data Warehouse: Data Dictionaries
Below are the data collection forms and data dictionaries for each source.
STS
IRAD
IRAD Interventional Data Form
Details baseline procedures performed during the acute hospitalization. This provides more granular information than what is collected on the acute form
IRAD Acute Dissection Data Form
Includes hospital details during acute phase, including patient history, presentation, diagnosis, management, and outcomes
Follow-up Form
Collected at six months and annually out to 5 years. It captures information from the clinic visit including medications, imaging studies, and adverse events or new aortic procedures
CHIP
Patient Health Questionnaire (PHQ-9)
Screens, diagnoses, monitors, and measures the severity of depression
GAD7
Used as a screening tool and severity measure for Generalized Anxiety Disorder
Pittsburg Sleep Quality
Assesses sleep quality over a one-month time interval
BMC2- Vascular Surgery
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